Acknowledgments

CBTRUS Statistical Report:

Primary Brain and Central Nervous System Tumors Diagnosed in the United States in 2013-2017

(Note: the lastest report to be published and posted by October 10, 2020)

This report was prepared by the CBTRUS Scientific Principal Investigator Jill Barnholtz-Sloan, Ph.D., her research staff affiliated with the Case Comprehensive Cancer Center, Case Western Reserve University School of Medicine, Quinn Ostrom, Ph.D. M.P.H. from Baylor College of Medicine, and CBTRUS President and Chief Mission Officer Carol Kruchko. The CBTRUS data presented in this report were provided through an agreement with the Centers for Disease Control and Prevention (CDC), National Program of Cancer Registries (NPCR). In addition, CBTRUS used data from the research data sets of the National Cancer Institute, Surveillance, Epidemiology, and End Results (SEER) Program. CBTRUS acknowledges and appreciates these contributions to this report and to cancer surveillance in general and in particular to the efforts of the hospital tumor registrars, the central cancer registries, and the staff from the NPCR and SEER programs whose efforts to collect accurate and complete data have made this report possible.

We are also grateful to the four neuropathologists, Drs. Janet Bruner, Roger McLendon, Tarik Tihan, and Daniel Brat, who reviewed the CBTRUS histology grouping scheme,  to our Consulting Neuropathologist, Dr. Janet Bruner who answered our questions and provided feedback throughout the year, to our Board of Directors and Advisors who reviewed this report, and especially . Hoda Anton-Culver,Ph.D., Elizabeth Claus, M.D., Ph.D., Roberta McKean-Cowdin, Ph.D., Nancy Stroup, Ph.D., and Reda J. Wilson, M.P.H., CTR..

Sources of geographic population-based cancer incidence data for 2013-2017 included in this report are from the following central cancer registries (CCR):

(SEER) Data was obtained from the SEER research data files, 2013-2016 for these population-based cancer registries for incidence calculations. All other population-based cancer registry data provided by the NPCR.

Sources of geographic population-based cancer survival data for 2000-2017 included in the 2020 CBTRUS Report for malignant brain and other CNS tumors were obtained from the US Cancer Statistics program for 45 NPCR registries and from SEER for 4 additional registries for the years 2001 to 2016 and for non-malignant brain and other CNS tumors for the years 2004 to 2016. This dataset provides population-based information for 97.6% of the US population for the years 2001 to 2016 from the following central cancer registries (CCR) of the NCI SEER program:

† Includes San Francisco-Oakland, San Jose-Monterey, Los Angeles, and Greater California* registries
‡ Includes Atlanta (Metropolitan), Rural Georgia, and Greater Georgia* registries

Citation: Quinn T. Ostrom*, Haley Gittleman*, Gabrielle Truit, Alexandra Boscia, Carol Kruchko, and Jill S. Barnholtz-Sloan, CBTRUS Statistical Report: Primary Brain and Other Central Nervous System Tumors Diagnosed in the United States in 2011-2015, Neuro Oncol (2018) Vol 20, (suppl 4). 1 October 2018, Pages v1-v86, https://doi.org/10.1093/neuonc/nox131

American Brain Tumor Association Adolescent and Young Adult Primary Brain and Central Nervous System Tumors Diagnosed in the United States in 2008-2012

This report was prepared by the Central Brain Tumor Registry of the United States (CBTRUS) executive team and the research staff affiliated with the Case Comprehensive Cancer Center, Case Western Reserve University School of Medicine and funded by a grant from American Brain Tumor Association.

The CBTRUS data presented in this report were provided through an agreement with the Centers for Disease Control and Prevention (CDC), National Program of Cancer Registries (NPCR). Contents are solely the responsibility of the authors and do not necessarily represent the official views of the CDC. In addition, CBTRUS used data from the research data files of the National Cancer Institute (NCI), Surveillance, Epidemiology, and End Results (SEER) Program. CBTRUS acknowledges and appreciates these contributions to this report and to cancer surveillance in general.

Sources of geographic population-based cancer incidence data for 2008-2012 included in this report are from the following 51 central cancer registries:

^SEERData was obtained from the SEER research data files for these five population-based cancer registries for incidence calculations. All other population-based cancer registry data provided by the NPCR.
*Data only available from 2008–2010

Sources of geographic population-based cancer survival data for 1978–2012 included in this report are from the following 18 central cancer registries:

† Includes San Francisco-Oakland, San Jose-Monterey, Los Angeles, and Greater California* registries
‡ Includes Atlanta (Metropolitan), Rural Georgia, and Greater Georgia* registries
* Data only available from 2000–2012

Citation: Quinn T. Ostrom, Haley Gittleman, Peter M. de Blank, Jonathan L. Finlay, James G. Gurney, Roberta McKean-Cowdin, Duncan S. Stearns, Johannes E. Wolff, Max Liu, Yingli Wolinsky, Carol Kruchko, and Jill S. Barnholtz-Sloan American Brain Tumor Association Adolescent and Young Adult Primary Brain and Central Nervous System Tumors Diagnosed in the United States in 2008-2012 Neuro Oncol (2016) 18 (suppl 1): i1-i50 doi:10.1093/neuonc/nov297

Alex’s Lemonade Stand Foundation Infant and Childhood Primary  Brain  and  Central  Nervous  System  Tumors Diagnosed in the United States in 2007‐2011

This report was prepared by the Central Brain Tumor Registry of the United States (CBTRUS) executive team and the research staff affiliated with the Case Comprehensive Cancer Center, Case Western Reserve University School of Medicine and funded by a grant from Alex’s Lemonade Stand Foundation.

The CBTRUS data presented in this report were provided through an agreement with the Centers for Disease Control and Prevention (CDC), National Program of Cancer Registries (NPCR). Contents are solely the responsibility of the authors and do not necessarily represent the official views of the CDC. In addition, CBTRUS used data from the research data files of the National Cancer Institute (NCI), Surveillance, Epidemiology, and End Results (SEER) Program. CBTRUS acknowledges and appreciates these contributions to this report and to cancer surveillance in general.

We acknowledge the efforts of the tumor registrars at hospitals and treatment centers, the central cancer registries, and the staff from the NPCR and SEER programs whose efforts to collect accurate and complete data have made this report possible. We also are grateful to Dr. Kimberly Johnson, Washington University in St. Louis, Dr. Michael Scheurer, Baylor College of Medicine and Reda Wilson, Program Epidemiologist, NPCR who reviewed this report.

Sources of geographic population-based cancer incidence data for 2007-2011 included in this report are from the following central cancer registries:

^SEER Data was obtained from the SEER research data files for these population-based cancer registries for incidence calculations. All other population-based cancer registry data provided by the NPCR.
* Data only available from 2007-­2010

Sources of geographic population-based cancer survival data for 1978-2011 included in this report are from the following central cancer registries:

† Includes San Francisco-­Oakland, San Jose­-Monterey, Los Angeles, and Greater California* registries
‡ Includes Atlanta (Metropolitan), Rural Georgia, and Greater Georgia* registries
* Data only available from 2000­-2011

Citation: Ostrom QT, de Blank PM, Kruchko C, Peterson CM, Liao P, Finlay JL, Stearns DS, Wolff JE, Wolinsky Y, Letterio JJ, Barnholtz-Sloan JS. CBTRUS Statistical Report: Alex’s Lemonade Stand Foundation Infant and Childhood Primary Brain and Central Nervous System Tumor Diagnosed in the United States in 2007-2011. Neuro-Oncol. 2015 Jan; 16 Suppl 10: x1-x36. Doi: 10. 1093/neuonc/nou 327