CBTRUS Statistical Report:
Primary Brain and Central Nervous System Tumors Diagnosed in the United States in 2017-2021
This report was prepared by the CBTRUS Scientific Co-Scientific Principal Investigators Quinn Ostrom, Ph.D., M.P.H. and her research team from Duke University, Department of Neuro-Surgery, Duke University School of Medicine in collaboration with Co-Scientific Principal Investigator Jill Barnholtz-Sloan, Ph.D., the research staff affiliated with the National Cancer Institute (NCI) Division of Epidemiology and Genetics, and CBTRUS President and Chief Mission Officer Carol Kruchko, collectively known as the CBTRUS Scientific Team.
The CBTRUS data presented in this report were provided through an agreement with the Centers for Disease Control and Prevention (CDC), National Program of Cancer Registries (NPCR). In addition, CBTRUS used data from the research data sets of the NCI, Surveillance, Epidemiology, and End Results (SEER) Program. CBTRUS acknowledges and appreciates these contributions to this report and to cancer surveillance in general and in particular to the efforts of the hospital tumor registrars, the central cancer registries, and the staff from the NPCR and SEER programs whose efforts to collect accurate and complete data have made this report possible.
We are also grateful to our Consulting Neuropathologists who answered our questions and provided feedback throughout the year, to our Board of Directors and Advisors, and especially Melissa Bondy, Ph.D., Stephen Francis, Ph.D., Sonia Partap, M.D., M.S., Ph.D., Joseph Wiemels, Ph.D., and to Reda J. Wilson, M.P.H., CTR, and Mary Elizabeth O’Neil, M.P.H., who reviewed this report.
Sources of geographic population-based cancer incidence data for 2017-2021 included in this report are from the following 52 central cancer registries (CCRs):
| Alabama | HawaiiSEER | Michigan | North Carolina | Texas |
| Alaska | Idaho | Minnesota | North Dakota | Utah |
| Arizona | Illinois | Mississippi | Ohio | Vermont |
| Arkansas | Indiana* | Missouri | Oklahoma | Virginia |
| California | IowaSEER | Montana | Oregon | Washington |
| Colorado | Kansas | Nebraska | Puerto Rico | West Virginia |
| ConnecticutSEER | Kentucky | Nevada | Pennsylvania | Wisconsin |
| Delaware | Louisiana | New Hampshire | Rhode Island | Wyoming |
| District of Columbia | Maine | New Jersey | South Carolina | |
| Florida | Maryland | New MexicoSEER | South Dakota | |
| Georgia | Massachusetts | New York | Tennessee |
(SEER) Data were obtained from the SEER research data files for these population-based cancer registries for incidence calculations. All other population-based cancer registry data provided by the NPCR, which may include registries for which data are also available through SEER.
*Data not available for diagnosis years 2020-2021
Sources of geographic population-based cancer survival data for 2001-2020 included in the 2024 CBTRUS Report are from 43 CCRs of the NPCR Program:
| Alabama | Idaho | Minnesota | North Carolina | Texas |
| Alaska | Illinois | Mississippi | North Dakota | Utah |
| Arizona | Kansas | Missouri | Ohio | Vermont |
| Arkansas | Kentucky | Montana | Oklahoma | Washington |
| California | Louisiana | Nebraska | Oregon | West Virginia |
| Colorado | Maine | Nevada | Pennsylvania | Wisconsin |
| Delaware | Maryland | New Hampshire | Rhode Island | Wyoming |
| Florida | Massachusetts | New Jersey | South Carolina | |
| Georgia | Michigan | New York | Tennessee |
Citation: Mackenzie Price, M.P.H., Christine Ballard, M.P.H., Julia Beneditti, M.B.S., Corey Neff, M.P.H., Gino Cioffi, M.P.H., Kristin Waite, Ph.D., Carol Kruchko, B.A., Jill S. Barnholtz-Sloan, Ph.D., and Quinn T. Ostrom, Ph.D., M.P.H., CBTRUS Statistical Report: Primary Brain and Other Central Nervous System Tumors Diagnosed in the United States in 2017-2021, Neuro-Oncology, Volume 26, Issue Supplement 6, October 2024, Pages vi1-vi85