News & Events

Join us on November 4, 2020 from 2-3:30pm ET for a talk "Focus on Brain Tumors."  This is part of a series of talks from what had been planned as the in person Annual Conference hosted by the North American Association of Central Cancer Registries (NAACCR). Registration is free at: https://naaccr.zoom.us/webinar/register/WN_1f-ijya4Qgmu53LjS_aVnw NAACCR is a professional organization that develops and promotes uniform data standards for cancer registration.  Our colleagues Gino Cioffi, MPH, and Nirav Patil, MBBS, MPH, will present based on their posters currently found on the CBTRUS website.  Their session agenda includes colleagues from NCI and the Cancer Surveillance Program…

This is International Brain Tumor Awareness Week – October 24th- October 31st.  This annual event, initiated by the International Brain Tumour Alliance in 2006, unites the international brain tumor community to draw attention to the many challenges of brain tumors for patients and the clinicians treating them, bringing focus to the need for more research. Learn more on the IBTA site:  https://theibta.org/

Take a look at the recent publication by our partner, the CDC National Program of Cancer Registries' (NPCR).  Find updated US Cancer Statistics here.  Congratulations to CDC-NPCR for this comprehensive report and for their public health service.

Dr. Priscilla Brastianos, Director of the Central Nervous System Metastasis Center at Massachusetts General Hospital/Harvard Medical School, joins CBTRUS President Carol Kruchko and Vice-President Dr. Steven Brem, as recipients of the Joel A. Gingras Jr. Award, the American Brain Tumor Association's (ABTA) highest honor. The award will be presented during the ABTA National Patient Conference, to be held online September 11-12, 2020. The award pays tribute to Joel who died from the treatment of a choroid plexus papilloma, a rare, non-malignant brain tumor. The Joel Anthony Gingras Memorial Foundation (JAG Fund) has supported the ABTA’s efforts to provide patient services…

The Centers for Disease Control and Prevention (CDC) has extended its contract with CBTRUS for September 30, 2020-September 29, 2021. This contract recognizes CBTRUS as the sole source of US yearly histology-specific reports on all primary brain and other central nervous system (CNS) tumors irrespective of their behavior, whether benign, uncertain, or malignant. The contract aims to enhance the reporting of data on brain tumors by “supporting production and publication of CBTRUS’ annual Statistical Report (link), by conducting and publishing special reports on primary brain and CNS tumors, and by serving as the primary brain and CNS tumor subject matter…

New Ependymoma Data Helps Raise Awareness and Improve Care­ An estimated 1,098 people each year learn they have an ependymoma, while an estimated 13,294 are living with the disease in the United States, according to data published by CBTRUS. The data were published in 2019 in the Journal of Neuro-Oncology in collaboration with NCI-CONNECT (Comprehensive Oncology Network Evaluating Rare CNS Tumors). Read the full story here.

Seventy-five organizations from around the world have endorsed the new Brain Tumor Patients’ Charter of Rights, a document intended to help initiate positive change in the care of people diagnosed with brain and central nervous system tumors. The Charter provides a framework for the reduction of inequalities in care and the achievement of policy objectives aimed at improving healthcare systems and communications. It can also be used by individual patients to underpin particular aspects of their care. Ultimately, the goal of The Brain Tumor Patients’ Charter of Rights is to achieve the best possible health and quality of life for…

The recent virtual conference held by the North American Association of Central Cancer Registries (NAACCR) included posters submitted by CBTRUS’ Gino Cioffi, MPH, and Nirav Patil, MBBS, MPH. The conference focused on surveillance as a keystone of progress in cancer diagnosis and treatment. Cioffi’s poster:  Ependymoma, NOS and anaplastic ependymoma incidence and survival in the US – 2000-2016 can be found here. Nirav Patil’s poster: The Epidemiology of Gliomas Near Brainstem in Children and Adolescents in the US - can also be found here. Both posters can also be found on NAACCR's site here.