Dr. Priscilla Brastianos, Director of the Central Nervous System Metastasis Center at Massachusetts General Hospital/Harvard Medical School, joins CBTRUS President Carol Kruchko and Vice-President Dr. Steven Brem, as recipients of the Joel A. Gingras Jr. Award, the American Brain Tumor Association's (ABTA) highest honor. The award will be presented during the ABTA National Patient Conference, to be held online September 11-12, 2020. The award pays tribute to Joel who died from the treatment of a choroid plexus papilloma, a rare, non-malignant brain tumor. The Joel Anthony Gingras Memorial Foundation (JAG Fund) has supported the ABTA’s efforts to provide patient services…
adminAugust 31, 2020
The Centers for Disease Control and Prevention (CDC) has extended its contract with CBTRUS for September 30, 2020-September 29, 2021. This contract recognizes CBTRUS as the sole source of US yearly histology-specific reports on all primary brain and other central nervous system (CNS) tumors irrespective of their behavior, whether benign, uncertain, or malignant. The contract aims to enhance the reporting of data on brain tumors by “supporting production and publication of CBTRUS’ annual Statistical Report (link), by conducting and publishing special reports on primary brain and CNS tumors, and by serving as the primary brain and CNS tumor subject matter…
adminJuly 28, 2020
New Ependymoma Data Helps Raise Awareness and Improve Care An estimated 1,098 people each year learn they have an ependymoma, while an estimated 13,294 are living with the disease in the United States, according to data published by CBTRUS. The data were published in 2019 in the Journal of Neuro-Oncology in collaboration with NCI-CONNECT (Comprehensive Oncology Network Evaluating Rare CNS Tumors). Read the full story here.
adminJuly 17, 2020
Seventy-five organizations from around the world have endorsed the new Brain Tumor Patients’ Charter of Rights, a document intended to help initiate positive change in the care of people diagnosed with brain and central nervous system tumors. The Charter provides a framework for the reduction of inequalities in care and the achievement of policy objectives aimed at improving healthcare systems and communications. It can also be used by individual patients to underpin particular aspects of their care. Ultimately, the goal of The Brain Tumor Patients’ Charter of Rights is to achieve the best possible health and quality of life for…
adminJuly 6, 2020
The recent virtual conference held by the North American Association of Central Cancer Registries (NAACCR) included posters submitted by CBTRUS’ Gino Cioffi, MPH, and Nirav Patil, MBBS, MPH. The conference focused on surveillance as a keystone of progress in cancer diagnosis and treatment. Cioffi’s poster: Ependymoma, NOS and anaplastic ependymoma incidence and survival in the US – 2000-2016 can be found here. Nirav Patil’s poster: The Epidemiology of Gliomas Near Brainstem in Children and Adolescents in the US - can also be found here. Both posters can also be found on NAACCR's site here.
adminJuly 2, 2020
Whether it's called malignant, non-malignant, or benign, each brain tumor in the United States is counted by CBTRUS. We've been keeping track of brain tumors since our first CBTRUS Report in 1996, and our data is a critical resource for everyone searching for cures around the world. This work is important: we estimate 87,240 new cases in the US in 2020 alone, 3,540 of which will be of children aged 0-14. We encourage everyone to support the many brain tumor activities taking place this month. Our first responders, researchers, patients, and brain tumor organizations need our support. Go Grey in…
adminMay 6, 2020
The NIH Center for Scientific Review has invited Jill Barnholtz-Sloan, PhD, to serve as a standing member of the Cancer, Heart, and Sleep Epidemiology A Study Section. Her term will begin in July 2020 and run to June 2024. Learn more about this study section here.
The 2020 International Symposium on Pediatric Neuro-Oncology (ISPNO) conference, initially scheduled for June 21-24, 2020 for has been postponed. The new date for the conference is Dec 13-16, 2020 in Nagano, Japan. Jill Barnholtz-Sloan, PhD will be presenting the Epidemiology Session keynote talk. More information about this conference can be found here.
The International Brain Tumour Alliance (IBTA) has assembled a list of links to information about COVID-19 for our global community of patients, caregivers, healthcare and allied healthcare professionals, among others. These links can be found on their site here.